Hemophilia. Managing Hemophilia. Hemophilia is a lifelong condition with no cure other than liver transplantation, a procedure that can sometimes cause health problems more serious than hemophilia itself. But hemophilia can be successfully managed by knowing when and how to treat a bleeding episode, and getting regular treatments that replace the missing clotting factor. Factor Replacement Therapy. Factor replacement therapy helps blood to clot and prevents long- term joint damage due to bleeding. It can be given while a bleeding episode is happening to promote clotting, or in regularly scheduled treatments to keep the blood healthy.

The therapy is . Once the clotting factor is in the blood, it begins to work quickly. About a quarter of children with severe hemophilia A develop inhibitors (antibodies to the clotting factor).

Their bodies view the new clotting factor as an invader and develop antibodies that block its clotting action. This can make the hemophilia difficult to treat. One method for overcoming the inhibitors is by carefully infusing larger amounts of the clotting factor over time. This way the body will start to recognize the clotting factor without trying to attack it. Inhibitors to factor IX (hemophilia B) are less common and harder to treat.

There is also a medicine called recombinant factor VII that can help prevent the body from developing inhibitors. This medicine activates another part of the clotting process directly, so that the missing factors are no longer needed to clot blood. Treating an External Bleed. In most kids with hemophilia, everyday cuts and scrapes can be treated with common first aid measures.

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The important thing is to give treatment right away (which may include giving a treatment of clotting factor therapy, if needed). Keep all necessary items handy (like a first aid kit) at school, home, and in the car. Also, make sure that all caregivers know what to do in an emergency. For small (superficial) cuts and scrapes, rinse the cut or wound with water and apply pressure with sterile gauze, a bandage, or a clean cloth. If the bleeding does not stop, your child may need a treatment of factor replacement therapy. If you cannot give it, take your child to the doctor's office or hospital right away for treatment.

Severe cuts usually require a treatment of factor replacement therapy. If the cut is severe and you can't get your child to a hospital right away or must wait for an ambulance, do the following: Rinse the cut or wound with water and apply pressure with sterile gauze, a bandage, or a clean cloth. If blood soaks through the bandage, place another bandage over the first and keep applying pressure. Raise the injured body part to slow bleeding. When bleeding stops, cover the wound with a new, clean bandage. Your child may bleed more in some situations than in others, especially when certain areas of the body are affected. Ask your doctor about these situations so that you know what to expect and can be prepared.

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Treating an Internal Bleed. Internal bleeding must be treated promptly with factor replacement therapy. Prolonged bleeding can cause serious health problems.

For example, a buildup of blood in the joints can wear down the smooth surfaces that allow limbs to bend easily. As the surfaces roughen, irritation and the number of bleeds can increase. This cycle can lead to chronic joint damage that may require surgery to remove the damaged joint tissue. Learn the signs of an internal bleed, and ask your doctor what to look for.

An older child should be encouraged to always tell you when he or she senses a bleed — the sooner it is discovered, the quicker your child can get treatment. If your child has an internal bleed, give factor replacement therapy treatment if you've been instructed to do so by your doctor, or go to the hospital.

Doctors recommend splinting the affected area for a short period of time and then applying ice to ease inflammation, promote clotting, and relieve pain. Acetaminophen (such as Tylenol) is the preferred pain reliever because many other over- the- counter pain medications contain aspirin or NSAIDs (non- steroidal anti- inflammatory drugs, such as ibuprofen or naproxen sodium), which can affect blood platelets and lead to increased bleeding. Watch Premium Rush Mediafire.

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